I'm going to go out on a limb here and say that if you've stumbled upon this blog, it's because you're connected to someone who has or had Infantile Digital Fibromatosis (IDF from here on out!).
The reason I'm putting this blog together is because it's something that we're in the middle of, and there seems to be precious little information out there regarding it. There are several medical journal-type articles, but nothing really in the way of a first hand account.
My goal is to document our experience with it as best I can a) for my own purposes and b) to hopefully help someone else who is dealing with it!
Please chime in here if you have information that I don't or are going through your own journey with similar or different experiences!
Much love ~
Sara
